These sites have all been recommended by previous patients as useful sites and contacts. The information here about these charities is from their own website. The link will take you directly to the website.
A UK based charity. ARC offers non-directive information and support to parents before, during and after antenatal screening; when they are told their baby has an anomaly; when they are making difficult decisions about continuing with or ending a pregnancy, and when they are coping with complex and painful issues after making a decision, including bereavement.
A UK based Charity. Corpal supports those affected by Agenesis of the Corpus Callosum which means that the major pathway across the two hemispheres has failed to form correctly.
A UK based charity providing specialist advice and support for spina bifida and hydrocephalus across England, Wales and Northern Ireland.
This website has useful links and resources for those families unfortunate enough to lose their baby.
An American based charity providing educational resources and support for families of children diagnosed with Dandy Walker malformations.